I was really expecting much better results. I just got off the phone with a nurse from the cancer center. Carly's counts are "stable" in her words. She told me she had just talked with our oncologist. The oncologist said to have Carly checked again in about 4 weeks. Here are her counts today:
white count 2.8
on June 25 her counts were:
white count 3.0
Not very improved in my eyes. I just don't understand what is going on here. We did the bone marrow test and found no cancer. So, what is up with her platelets. This is not very comforting to me. Makes me wonder if cancer is just looming around and hasn't reared it's ugly head yet.
The nurse also told me that the oncologist said to "watch for signs and symptoms". Great. More for me to worry about. I had thought we did the bone marrow on Carly to rule this out and put my mind at ease. Well, obviously nothing is ruled out and my mind is NOT at ease. It's racing.
I would really like to get to the bottom of this platelet issue. Not sure who can do that for us. This has gone on since May. I just don't know what to do. I just hate sitting and waiting for cancer to show up. That's just exactly the way I feel. This is a crappy way to have to live.
Guess that's about it for today. I'm not in the greatest mood after receiving this news.
1 day ago