"Grieving the loss of a child is a process, it begins the day your child passes and ends the day the parent joins them."

Wednesday, November 11, 2009

Wordless Wednesday...'er not!

Okay, so it's not such a Wordless Wednesday. Can you guess what kind of week I'm having??????? You don't need to think too hard. It's pretty self explanatory!


Ahhhh, such a great combination. Coke and chocolate. Dove, it is my new favorite!

Yep, it's that time of the month.........again! I get more sick of it each and every month. Not to mention, another week of H3ll concerning the school and Carly. There's no doubt about it, I've got my work cut out for me. We head back for part 2 of our IEP mtg., on Nov 16. Ugh! That's about all I can say..Ugh!

Carly is finally back to school. I sent her on Monday. She should be fairly well covered for the Swine flu. Plus, the Swine flu has slowed way down at her school. Of course, I'll pull her out again if and when it kicks back up. The swine flu that is!

We take Carly to have her second H1N1 shot sometime after Nov 24. That's going to be here before we know it. I'm so glad we kept her home for the last couple of weeks. I found out that her class, which has 18 kids, was down to 8 kids for 2 straight weeks. Not to mention many teachers and students from other grades were out sick as well. Some still are.

We were suppose to be heading to Ann Arbor tomorrow, but we canceled. I will not knowingly take her into a hospital that is full to the brim with the Swine flu. No way, no how. Both cardio and oncology were in agreement with this. Oncology was satisfied that her pediatrician just did a physical exam on Carly in mid October. However, we do need to have labs drawn within a few days. We could use a few prayers for good labs. I'm fairly comfortable that we will have decent results. Cardiology says we can go in 6 months, or bring her in whenever I'm comfortable. I'm sure I'll take her before 6 months!

Ashleigh was home over the weekend. Carly was THRILLED! As she always is whenever "sissy" is around. Last Thursday night, while Carly was lying in bed, we had a little conversation. It went like this:

me: Carly, sissy is coming home tomorrow night.

C: Yeeeeaaaahhh! (used her words)

me: What are you and sissy going to do?

C: taps her chin and says, hmmmm. Then continues with all this: books, (used her words). (She signed all of the following without skipping a beat), ~ eat cake, cookies, drink juice. Play blocks, puzzles, games, color, write. Play outside, swing, slide, climb.

She responded with continuous signing. She didn't pause to think about it. She just let it flow. Now..can anyone tell me, does my daughter communicate??? I believe she does. Yes, she does use some words, and her words are quite clear, but she mainly signs. Signing is her thing. Matter of fact, I've been putting a list of her signs together for the stupid school. So far I'm up to 457 all learned in the last 2 years. And I'm still working on list! Can anyone explain to me, why in the world the school does not see this?????? They are denying Carly her native language. Signing. That's the way I look at.

Yes, she kept Ashleigh quite busy over the weekend!

Nothing much else going on around here. Just the normal. Researching laws and regulations that the schools are suppose to follow regarding special needs kids. Gathering tons of information. Chatting with advocates and attorneys. Preparing for the upcoming IEP.

So much for the whole Wordless Wednesday theme!!

Have a great week everyone. I'll try to get back into the swing of things. I promise!


Lacey said...

I finally got jaxson's first dose in. Sheesh, it was like pulling teeth. Oh well, now i feel much better, and happy that we haven't seem much of it at the boys school.

Tina said...

Wow Carly sure does communicate, and how, I'm surprised that the school can't acknowledge this, like you said signing is Carly's native language right now and I really hope they accept this sooner than later.
Glad Carly had a fun time with Ashleigh home, I am sure she must be missing her when she's away.

Bethany said...

LOL Mt. Dew addict here. It is bad. Really bad. LOL