"Grieving the loss of a child is a process, it begins the day your child passes and ends the day the parent joins them."
BJKarrer

Monday, August 31, 2009

My Menu Plan.

It's Monday again. Time to get my menu plan posted on the fridge. I've decided that I really like this idea. I'm able to check my menu and pull what I need out of the freezer each night, in order to be have whatever it is thawed by the next day.

I followed the menu pretty closely for the most part. Only two days that I needed to change it up a little. One, because Paul didn't feel good last week (still doesn't) and he wanted soup and grilled cheese. The other day was the day of Carly's disaster dental appointment day. I was too riled up to think straight. That night, everyone ate left overs.

Anyway, grocery shopping was a breeze. I was in and out of the store in 1 hour and 15 minutes. I made a list of items that I would need over the course of my two week menu plan. I did, of course have to add other items to the list. Items of necessity, such as snacks, fruit, paper goods, etc... And I only forgot to write one item down on my list the first go 'round. It was brown rice. We eat a lot of that around here!

Here's my menu plan for the next two weeks:

  • Tonight - Hot beef sandwiches (beef was left over from last weeks roast) mashed potatoes & green beans-from the garden.
  • Tue - Chicken breasts, couscous & veggies.
  • Wed - Spare ribs, sweet corn and roasted potatoes-from the garden.
  • Thur - Homemade Macaroni & Cheese, burgers on the grill & veggies.
  • Fri - Pizza night.
  • Sat - no cooking. We have a 50th Anniversary party to go to.
  • Sun - Shredded pork sandwiches (left overs from Wed) & salad.

Next week:

  • Mon - Brats on the grill, macaroni salad & sweet corn.
  • Tue - Crock pot pork loin, baked potatoes along with veggies.
  • Wed - Lasagna, zucchini (from the garden) and garlic bread.
  • Thur - Chicken chimmichangas and Spanish rice.
  • Fri - Pizza night.
  • Sat - Baked beans and hot dogs, fried potatoes, crescent rolls.
  • Sun - Scalloped potatoes and ham, green beans and rolls.
Now for a yummy recipe from last week. This is what we call Chicken Broccoli Casserole. Our neighbor made this for us just after the birth of Brad. We loved it. I've made it ever since and it's a big hit in our home. My parents love it too.

3-4 Chicken breasts
1 package frozen broccoli
1 can cream of chicken soup
3/8 C. of mayo
1 T. lemon juice
Shredded cheddar cheese
1 stick of margarine
5 slices of bread (cubed)

Bake chicken and de-bone. Cook broccoli and drain. Chop up chicken and broccoli. Mix mayo, soup & lemon juice together, mix in the chicken and broccoli. Put into a greased casserole dish (2 qt works fine) Then sprinkle with desired amount of cheddar cheese. Melt stick of margarine in a skillet. Toss in cubed bread and toss until covered. (sometimes I add a bit more margarine). Cover the top of the casserole. Bake @350 for 45 minutes. Uncovered.

This is delicious. I serve it with brown rice and dinner rolls.

Sorry, I tried to add a photo but for some reason, blogger isn't allowing it tonight :o(

Saying Goodbye.

It's been a busy weekend around here. I did tons of laundry on Friday and Saturday. Trying to get everything squared away to send Ashleigh back to Kalamazoo. We packed. Did more laundry. Packed some more...tiring!

Saturday, Ashleigh, Carly and I went shopping. Ashleigh needed some last minute things to take to her apartment. We made it fun though. We also went to Panera Bread for lunch. Their soup and sandwich deal is so yummy! Expensive, but yummy! It was the perfect day for soup too. We had some really chilly weather up this way over the weekend.

Sunday we were up and at'em early. Ashleigh needed to get her tiny little Chevy Cavalier packed with TONS of things. After it was packed (I should have taken a picture) there was just enough room for her to sit. It was packed tight and full. I did manage to take a couple of pictures of the girls saying goodbye.

After I snapped a few pictures, it was off to Sesame Street Live for Paul, Carly and me. Carly was a little upset that "sissy" wasn't going with us. At that point, Ashleigh was still doing some last minute things before taking off. Poor Carly left home with Ashleigh here, but returned to no "sissy".

Carly was a bit unsure when the show first started. She kept saying she wanted to go home. Paul and I were a little worried that this was not going to work. We kept talking to her and trying to get her 'into' the show. Finally, she was mesmerized. She couldn't take her eyes off the stage.

The show was great! We had great seats. We sat directly in front of the stage. 4th row, smack dab in the middle. I took several pictures, but have to edit them first. Then I'll share!

By the time intermission came. Half way through the show. Carly was begging, "more, more, more"! At the end of the show, they did a parade. Carly LOVES parades. Of course, she wanted "more, more, more"! Sadly, the parade was the Grand Finale. We left the show and Carly was in a great mood. She thankfully, made it through the show and was quite happy watching all of her Sesame Street friends sing and dance on stage.

I'm busy working on my Menu plan for this week and next. I'll share when I get it all jotted down on paper :o) ! It worked so well the last couple of weeks. I did change it up a couple of times. Once, Paul was sick and wanted soup and grilled cheese, so that took the place of one meal.

For now, I leave you with the girls, saying goodbye.



Saturday, August 29, 2009

A bit riled up..

Actually, I'm still revved up about Carly and the dentist ordeal. I just can not believe how she was treated. How I was treated. Not being allowed in the exam room with her. I'm still blown away by that. I really just kept thinking that they were coming to get me any minute. They never did.

Here's why I'm still reeling over this. You see, when Carly came out into the lobby where I was talking to that very snotty lady behind the desk. She was crying. Had been crying. It was very obvious. Her face was streaked with tears. It was red and blotchy. I was floored to see her in this state. I thought sure they would take me to the exam room. Especially if she were upset. We all know that never happen.

As we got into the car and headed to McDonald's, I noticed a nice red spot on her left cheek. I knew darn well it was from a finger. I watched it over the course of a few hours. I then determined it was in fact a nice bruise from a finger. Carly also had other bruising on the side of her face (same side where the finger print bruise was) and down that side of her neck. She had a nice bruise on her arm. I'll tell ya, I've been sickened over this. Yesterday, I gave her a bath and discovered more finger print type bruises on her shoulder. I'm pissed. To put it mildly.

At least if I would have been in there. I could have seen just how they were holding her. How they were treating her. If they were being mean to her. Although, they wouldn't have been if I were in there too. I do realize that Carly has lower than normal platelets and that could have played a role in this. Honestly, I don't think there is any excuse out there that could justify these bruises being left from a dentist appointment. Low platelets or not. After thinking about it, the bone marrow test in June left no bruising. If you're unfamiliar with that process. They sedate the kids and then put them on their side, in a fetal position. Holding them quite tightly, so the kids don't squirm or move around and cause some serious injury to themselves. I'm not kidding when I say they hold them tight. I've been in the procedure room many times with Carly and witnessed this. Through all those bone marrow and spinal taps, Carly has NEVER bruised. EVER! Even with much lower platelet counts on several of those occasions.

We have made the decision that she will not be going back to that dentist. It wasn't a very hard decision to make. I have already gotten a phone number to another pediatric dentist and I plan on calling them this week to schedule Carly for a 3 month check up. Our fear now, is that Carly will have been so traumatized through this whole ordeal, future dentist appointments may prove to be nothing short of a nightmare for her.

I hate being all riled up....

Thursday, August 27, 2009

Thankful Thursday


  • Today, I'm giving thanks to the fact that Carly's dentist appointment is behind us.
  • Today, I'm giving thanks that God placed Carly in our family.
  • Today, I'm giving thanks to the fact that I have one super good 'in real life' friend who listens to me gripe about ignorant people I encounter nearly daily.(Like the snotty woman at the dentist)
  • Today, as every day, I'm thankful for my family.

Wednesday, August 26, 2009

Dentist appointment.


Carly had her dentist appointment this morning. The one where she was to have her intruded tooth checked out. Remember, the tooth that jammed down into her gum after the fall off a bike at summer school? Today was the day.

Our morning didn't exactly start off smoothly. It was raining cats and dogs outside. Carly is scared to death of rain.(It's a long story, I'll tell you all about it some other time). I knew I was in for trouble due to that darn rain. I got her dressed. She freaked out hearing the rain hit the skylights in the house. We then put Hannah Montana on her boom box and blasted the house out! Only because I needed her to calm down so I could pre-medicate her before her dental appointment. I was hoping the loud music would put her in a better mood. It did for a few minutes. Until I discovered...I had forgotten to do her hair. She HATES having her hair done almost as bad as she hates the rain. I decided I had better get her med in her first. Then battle her with her hair. She ended up in tears, as usual with the brushing of her hair. Ever since she lost her hair due to chemo., she absolutely hates anyone touching/brushing/combing her hair. I've been told that some people have tender scalps after chemo...maybe so, but this is unreal. She's been off chemo since November '06. Although, before chemo., she would sit with no problem while I did her hair. Maybe there is a coloration there.

Finally, we headed out the door. I had to carry her with an umbrella over our heads to the car. She worried herself sick all the way to the Dentist all because of the stupid rain.

Once at the Dentist, she went right in and made herself at home. Scary how comfortable she is in a medical environment. I talked with the hygienist first. Then they came and took Carly to the exam room. They told me they would rather I not go back with her. Carly wouldn't let go of me. I had to pry her off me and put her hand into the hygienists hand. I was a bit uncomfortable with that. No dentist has ever told me to wait in the waiting room while one of my kids goes in for a checkup.

The dentist had me come into his office. We talked a bit. And then. BOOM! He started going on and on and on and on and on...about "special needs kids". How some are so combative and how they need to restrain them. I nearly fainted. I couldn't believe what this guy was telling me. He hadn't even met Carly at this point. How did he know anything about her? What he knew was, Down syndrome. I wrote it on her registration form. Of course, he had to jump the gun and assume the absolute worse in my daughter. I snapped back at him and told him, "Carly is NOT combative whatsoever". Finally, he caught my drift and shut his mouth.

The appointment went well. They cleaned her teeth. Did x-rays and an oral exam. No cavities!!
Which surprised me a little. Carly is not too good at brushing her own teeth, but insists on doing it herself. And, she has never been to a dentist before. Bad of me I know. Honestly, our plate was just a tad bit full the last few years. Anyway, for preventive measures and to monitor her injured teeth, she will be going in every 3 months for cleanings and an oral exam. Fine by me. I would rather make sure her teeth are getting good cleanings. We will of course have to pay for a few appointments out of pocket, but it's only $60. to have a cleaning. Money well spent in my opinion.

As far as her damaged tooth/teeth. Well, we have to sit back and hope they continue to do well. This dentist thinks they will be okay. He did discover today that her top two front teeth were also damaged during her fall off the bike. The ER didn't x-ray her top teeth. So, we now have 5 teeth to be on the lookout for. The three on the bottom and two on the top. Ugh! We have to watch for abscess teeth and rotting teeth. Nice huh? Oh, the dentist today also said that if she were to fall and bump her mouth again, it could be disastrous for her teeth. Just what a mom wants to hear. NOT! They are all permanent by the way.

They did end up putting her in a papoose. I'm not sure how I really feel about that. I mean, I want her safe for sure, but not sure she truly needed to be strapped down for crying out loud. They said she kept reaching up and messing with her mouth. It makes me wonder if that were the honest truth. She is so shy around people, I doubt she moved one single muscle during the entire 30 minutes or so. Course, I will never know because they refused to allow me in the room with her. I mean, Carly is a kid who goes in for lab work/blood draws and climbs up in the chair all by herself. She sits perfectly still while they poke her. She doesn't hardly bat an eye.

I think it all boils down to Carly having the label of Down syndrome. They think they need to strap our kids down. I beg to differ. Our kids, or should I say, my kid is not a difficult kid. She is just like every other kid out there. Sure, she may look a bit different. She may learn a bit slower, but she isn't a freak show for goodness sake. Treat her like every other kid. Not like an animal.

As we were checking out. The lady at the desk was oh so snotty. She told me that because Carly is a "special needs kid" she has to be seen early in the mornings. I said, "WHAT. Are you serious"? I could not believe what I just heard. She then went on to say, "That's what the doc said. Give her an 8:30 appointment". That didn't sit well with me at all. I told this gal that it was just too bad what the doctor says. That time will not work for us. I went on to tell her that Carly needs to be pre-medicated an hour before she is seen. So you want me to pull her out of bed and jam a syringe in her mouth and then head out the door to this place? She responded with, "yes, that's what doc said". I told her quite frankly, "too bad what the doc said. We need a time that is convenient for us". About that time, the hygienist came in and asked what the problem was. I told her before this old snot of a woman could get a word out. Finally, after the hygienist gave the snot woman a dirty look, we got a 9:30 am appointment. As we were leaving the old snot said, "we have to give the special needs kids early appoints. They tend to act up more in the afternoon". Lucky for her, I grabbed Carly's hand and headed out the door. On the tip of my tongue, was a not so nice comment that would have likely gotten me thrown out on my butt. What was it you ask? This is what I wanted to say.... "my daughter may have been born with Down syndrome and you all may look down on her for that...but at least she wasn't born with a big case of ugly like you were".

Glad that appointment is over. I'm also glad that Carly had no cavities. Shew!