I'm sorry. I did intend on picking up on Carly's story this weekend. I just don't have it in me right now. I'm scared, frustrated, angry and sad. I don't understand what is going on with Carly and her blood work. I know the doctors say it's not leukemia. My question then. What the heck is it???
Our NP did mention that there is a "condition" as she put it, called ITP. Basically this condition can be had by anyone. Not just people with Down syndrome, not necessarily people who have come off treatment. I didn't ask how they would conclude this type of diagnosis. Didn't want to know just yet.
Also, we were told that the clinic has a few kiddos who, for some reason after treatment did this very same thing with their platelets. Whatever the case. I'm tired of all of it. I want my daughter to be healthy. I want her to enjoy every single day. I too, want to enjoy every day. This is causing me much grief and worry. The other thought with Carly and her platelets is that she just hasn't fully recovered from her viral bug. Too many thoughts and no concrete answers is just driving me crazy!
I pray often that her platelets will recover. However, she now is battling some sort of sinus thing. At first I thought is was allergy related, but now I'm just not sure. I have to go to the doctor tomorrow and plan on taking Carly with me. I know when the doc takes one look at her nose, he is going to want to put her on an antibiotic. Which will in turn, cause her blood work to be slightly off, again!
Anyway, I PROMISE, I will post the continuation of Carly's story. As soon as I get my head straightened out.
2 days ago