"Grieving the loss of a child is a process, it begins the day your child passes and ends the day the parent joins them."
BJKarrer

Wednesday, September 30, 2009

Tuesday, September 29, 2009

Why does it have to be so difficult?

Why does it have to be so difficult to work with the school regarding Carly and her education? I really hate that it's so difficult. It really shouldn't be. Except that they think, they know, my daughter better than me. Just because they have read articles about some kids with Down syndrome. They believe that holds truth to all children with Down syndrome.

The problem?? Well, Carly uses ASL signs as her main form of communication. Yes. She does talk some. She is adding more and more words to her vocabulary every day. She knows her ABC's. She knows her colors. She knows all of her shapes. She can write her name. She can write the alphabet. She is beginning to spell words. She can even recognize words that I spell out loud to her dad. So she won't know what were talking about. For example: Carly really dislikes it when it rains. I spelled r a i n to Paul the other night because we had a chance of rain in the forecast. Carly heard me and yelled, "NO" and then went on to sign "sunshine".

All I want the school to do is learn some signs. NO ONE knows signs at that d@%* school. Not one single person. How is Carly suppose to learn when know one can understand her??? She is getting frustrated and actually very bored. She is even falling asleep in class. Which is so not like her.

Last week we had a meeting with Carly's 'team' of educators. We got nowhere fast. The principal suggested putting Carly on a reduced schedule to see how she does. We decided we would try that for only a couple of weeks. Well, Miss Carly is thrilled to be coming home. She is happy and playing. She is writing, coloring and doing her puzzles all afternoon. Oh, and she is taking NO naps while at home. She hasn't fallen asleep one single time since we started this last Wednesday. That tells me. My poor daughter is so very bored at school.

The school will not address my questions regarding them learning signs. They completely ignore that issue and turn the conversation quickly onto another subject. I've even provided them with resources regarding ASL signs. Still, they ignore me.

Today I got in touch with a local advocate group. I was told to fight tooth and nail to get an interpreter in the school. I was told that one should have already been in place. Without one, Carly is not getting the appropriate education (per F.A.P.E) that she is entitled to. I was also told to fight to revamp Carly's curriculum to her needs. So far, they have not done this. Again, Carly is not getting the appropriate education that she is entitled to.

As much as I hate having to get nasty with other people. It's time to get down and dirty. I hate that the school is forcing my hand at this. I really don't like it when I have to get nasty. However, I can and I will. I've had to do with doctors many times over, so I'm not really afraid to. I just really hate that it comes down to this. I will now be labeled "that mother" in the eyes of the 'educators'. Albeit, the advocate group put it best, "Carly is regressing". In fact, the advocate group said they were surprised that Carly isn't having behavioral issues as a result of being neglected/cheated out of learning at school.

This is why I went to that d@%* school back in the spring. I wanted to make sure that moving Carly on to first grade was the right move. I was assured that it was. Well. Doesn't look to me that it was the right move. Not if they aren't willing to meet Carly's needs. Needs that will likely need to be altered throughout her school years. I realize that Carly may not be able to keep up academically with her peers, but she is very capable of learning. She has proved that a million times over.

As for the reduced schedule. I will be putting a stop to that. It has bothered me from the first day of the trial. Carly is missing all of her xtra's. Such as ~ gym class, music and art and recess. Those are huge areas for social growth. Carly needs that so much.

Sure wish I knew why it has to be so difficult.

Monday, September 28, 2009

Not Me Monday.

It's Monday, again. Another week to try my hand at the Not Me Monday post, created by MckMama. Jump on over to her blog and join in. If you dare!

This week, I did not run over one of our kittens while running out on an errand. And then choose not to look to see the damage I had done. I would never opt to back my car up a tad to see if said kitten would run or limp away. I would never put my car in drive and nudge forward a tad waiting for said kitten to run off. I would not, under any circumstances back up again in hopes that the squealing kitty would run off. (it did and is okay now..can you believe that!) I would never do anything quite like that. Not me!

After going to the grocery store last week, I did not forget to purchase cat food for the poor kitty, who I just run down. I'm not feeding said kitty oatmeal, eggs and bread crumbs until Paul brings cat food home tonight. Nope, not me!

I did NOT argue with Carly's speech teacher during a meeting last week. This teacher who thinks she knows my child better than I do. I would never argue with anyone regarding my daughter. Not me!

No way did I mess up my menu plan last week when Paul wanted to go to a Mexican restaurant. I would never mess with my planned out menu for the week just to get a night off from cooking. Not me!

My menu plan...

I've gotten a jump start on my menu planning today. Normally, I have it set in my mind, but not actually written down until at least Tuesday.

This weeks menu as follows:

  • Mon. - Chili and corn bread muffins
  • Tues. - Meatloaf, boiled potatoes & veggies
  • Wed. - Pulled pork sandwiches-(leftovers from this menu plan) & coleslaw
  • Thur. - Soup with ham and provolone cheese paninis
  • Fri. - Pizza night
  • Sat. - Bratwursts & potato salad (made with xtra potatoes from Tuesdays meal)
  • Sun. - Roast chicken & roasted potatoes with green beans

Menu for week of 10/5:

  • Mon. - goulash, potatoes & veggies
  • Tue. - stuffed ravioli, salad & garlic bread
  • Wed. - baked pork chops, mashed potatoes, gravy & veggies
  • Thur. - burgers, baked beans & fries
  • Fri. - Pizza night
  • Sat. - BLT's
  • Sun. - roast in the crock pot, noodles and veggies
I'm sharing my recipe for the beef stew that we had last week. It's really good and really easy to make. Just click here for the 5 hour beef stew recipe. You wont be disappointed if you choose to make it!!

Friday, September 25, 2009

Show Us Your Life Desserts

Hop over to Kellys blog and find some yummy recipes. This is a very simple, yet very yummy pie recipe.

Peanut Butter Pie



8 oz Cool whip
1 pie shell (baked)
3/4 C peanut butter (I use crunchy)
3/4 C powdered sugar
1 small box instant vanilla pudding
1 2/3 C milk

Crumble the peanut butter and powdered sugar together in a small mixing bowl.
Mix pudding and milk in a separate mixing bowl.
Sprinkle the peanut butter/pwd sugar mixture on the bottom of the pie shell. Use about 1/3 of the mixture. Then pour the pudding mixture over the top. Sprinkle another 1/3 of the peanut butter/pwd sugar mixture on top of the pudding.
Top with cool whip and sprinkle the remaining peanut butter/pwd sugar mixture on top. I don't always do this step. Sometimes I just split the peanut butter/pwd sugar mixture in 1/2. Sometimes I shave up a chocolate bar to place on the top.
Chill for at least 1 hour and then serve.

It's very yummy and quite easy too!